Re: looking for help

From: Kelly Murray (
Tue Dec 30 14:11:38 2008

I have had several surgeries and have gone to the BEST. I am once again back to having to take pain meds. I also went to Germany and had the spray gel done.

I know there are a lot of people on here that DON"T just complain and rely on pain meds. You almost sound like some of the idiot drs that tell you it's in your head or "Deal with it."

It's everyone's choice to go to pain management or have surgery but I have only seen about 5% of the people that I know that have had surgeries that have gotton better. So surgery is not the answer for everyone. I admit that I am probably not as bad off after having surgery in Germany but I still have a hard time with the adhesions.

You can get worse with every surgery, you can lose function of your kidney's and bladder and you can die from having too many surgeries.

I can't believe as an adhesion sufferer that you can say that pain meds are a crutch for people. It's people's opinion like yours that gives pain sufferer's a bad name.

Most of us do not like to take the pain meds but have to just to try to live somewhat normal lives.

You think that having surgery after surgery is better then going to pain management?? I beg to differ on that opinion.

>----- Original Message -----
Sender:<> (dawn) Subject: Re: looking for help

At Wed, 15 Oct 2008, Lesa wrote: >
>Alan -
>I am positive your wife has adhesions from her surgery. The previous
>reply to mine is correct, surgery is the only thing to get rid of the
>adhesions BUT DON'T DO IT! I too believed that surgery (lysis of
>adhesions) would help but it creates only more adhesions. Believe me, I
>know what I'm talking about. Please read my story on the adhesions
>There are ways to minimize the pain, I am have been on Oxycontin for the
>past 6 years, it's the only way I can cope. I was ignorant and believed
>my original surgeon (gynecologist) who told me surgery was the only
>answer. I've had at least 10 lysis of adhesion surgeries and almost
>died during the last one. I know know that surgery, at least in this
>country, doesn't work, it makes things worse. Until there is an
>adhesion barrier approved to be used in the US, these type surgeries
>don't work.
>I'll keep you and your wife in my prayers.
>At Tue, 30 Sep 2008, Alan wrote:
>>My wife had a hysterectomy to remove a grapefruit sized Uterine Fibroid
>>2 years ago. She did not have Endometriosis but the Uterus was removed.
>>The pre-op Ultrasound showed the fibroid against the large intestine and
>>the bladder. She has had a lot of abdominal pain in the lower right
>>(inguinal area) and her doctor does not think it is from adhesions. She
>>says the pain is worse on the right but recently there is also pain on
>>the left with a pulling sensation and some pain between them. The scar
>>(about 6") is just below where the pain goes across the abdomen. The
>>first 7 months after the operation she was numb in that area and
>>partially numb for another 5 months. My three questions are can
>>adhesions be caused from surgery if no Endometriosis was found? Can you
>>develop Endometriosis after your Uterus has been removed? and can anyone
>>recommend a doctor in New Hampshire or New England?
>>Thank you so much!
>That is a negative way to look at lysis of adhesions. Yes all surgery
>can cause adhesions to come back, but adhesion barriers have been
>approve in the USA only a few Dr are willing to work with it because
>it time consuming a tedious and they want to get in and out. with
>adhesion Barriers I have been able to go 5-6 yrs with out surgery
>would have been longer had I not had a hernia. some get less some
>more. Dr Redan in Orlando Fla listed on this web site the CAPPS
>program listed is excellent. and worth traveling to have the
>surgery. as far as pain some still have a little everyone is
>different. Pain meds are a crutch for some they would rather take it
>then try to fix the problem. Some Dr are just not great surgeons. I
>have noticed that alot of people just do alot of complaining and just
>want to rely on pain meds they are and meant to be short time and
>addictive and no way to live. sometimes a positive attitude and
>Healthy living can help. The pain is real but it wont go away unless
>you try to fix it so if bad surgeries have had happened travel to the
>ones who have had success. pain free for a few years at a time is
>better than all the time. reality is adhesion will never go away
>permantently so enjoy the time between. living on pain meds is not

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